Grief & Loss

The 17 sources listed below are each rated on how they can help caregivers better understand and deal with grief & loss.

Sources are ranked from highest to lowest.
ALZSmart Score™ - Extraordinary90%

Alzheimer Society Canada

Geo Location: All (CA)

ALZSmart Review™ - Summary of Contents

[PDF - 16 Pages]  Comprehensive guide on ambiguous loss and the grieving process for individuals and families.
Ambiguous Loss and Grief in Dementia
ALZSmart Score™ - Excellent85%

Alzheimer's Society

Geo Location: All (UK)

ALZSmart Review™ - Summary of Contents

This is part 1 of a 9 part series:  1) Grief, loss and bereavement, 2) Feelings after a diagnosis and as dementia progresses, 3) Grief, loss and bereavement - managing your feelings, 4) Supporting a person with dementia during grief,  5) Residential care and managing feelings,  6) Feelings after the person has died, 7) Readjusting after bereavement, 8) Supporting a person with dementia during bereavement, and 9) UK resources.
Grief, Loss and Bereavement
ALZSmart Score™ - Excellent85%

Family Caregiver Alliance

Geo Location: All

ALZSmart Review™ - Summary of Contents

Discusses chronic illness & loss, ambiguous loss, and anticipatory grief.  Lists 33 symptoms of grief.  Explains the stages of grief.  Has 12 tips on how to help others who are grieving.
Grief and Loss
ALZSmart Score™ - Excellent80%

Fisher Center for Alzheimer’s Research Foundation

Geo Location: All

ALZSmart Review™ - Summary of Contents

Defines the terms:  grief, bereavement, and mourning.  Discusses the phases of coping with a life-threatening illness like Alzheimer’s.  Explains what anticipatory grief is.  Explores the goals of grief counseling and grief therapy.
Bereavement and Grief
ALZSmart Score™ - Very Good70%

Alzheimer's Association

Geo Location: All

ALZSmart Review™ - Summary of Contents

Lists common experiences of Alzheimer's caregivers at each stage of the grieving process.  Offers 9 ways to cope with grief and loss.
Grief and Loss as Alzheimer's Progresses
ALZSmart Score™ - Very Good70%

Alzheimer Society Canada

Geo Location: All (CA)

ALZSmart Review™ - Summary of Contents

Describes the term ambiguous loss.  Has links to other resources for ambiguous loss and grieving.
What is Ambiguous Loss?
ALZSmart Score™ - Very Good70%

Pathways Home Health and Hospice

Geo Location: All

ALZSmart Review™ - Summary of Contents

Provides 10 hints for telling a person with dementia about a death.  Has 9 ideas of ways to help the person with dementia accept the death of someone else.
Dementia Patients and Grief
ALZSmart Score™ - Very Good70%

Patients Engage

Geo Location: All (IN)

ALZSmart Review™ - Summary of Contents

Shares 8 tips on how to break the news about the loss of a family member or friend.  Describes how to help the person with dementia deal with the news.
How to Support a Grieving Person with Dementia
ALZSmart Score™ - Very Good70%

Family Caregiver Alliance

Geo Location: All

ALZSmart Review™ - Summary of Contents

Describes symptoms of overwhelming stress.  Provides 9 tips for coping with the ambiguity of memory loss.
Caregiving and Ambiguous Loss
ALZSmart Score™ - Good65%

Caregiver Action Network

Geo Location: All

ALZSmart Review™ - Summary of Contents

Discusses the paradox that caregivers may feel both relief and guilt about the loss of a loved one.  Expains how the process of facing grief can be an integral to our growth and development as human beings.
“I Am Relieved That It’s Over … And Guilty For Feeling That Way”
ALZSmart Score™ - Good65%

Dementia.org

Dr. Kesstan Blandin

Geo Location: All

ALZSmart Review™ - Summary of Contents

There are 3 parts in this series on dementia grief:  1) The Unique Characteristics, 2) What Are The Process States?, and 3) What Are The 3 Stages?
Dementia Grief – Part 1: The Unique Characteristics
ALZSmart Score™ - Good60%

Alzheimer Society Canada

Geo Location: All (CA)

ALZSmart Review™ - Summary of Contents

Offers 9 tips for coping with grief.  Has a section on grieving in the final stages of dementia.
Grieving
ALZSmart Score™ - Good60%

Dementia Australia

Geo Location: All (AU)

ALZSmart Review™ - Summary of Contents

Discusses how strong feelings may surface after the death of someone with dementia, sometimes quite unexpectedly.  Offers 7 ideas for getting back on your feet.
Coping After the Death of Someone with Dementia
ALZSmart Score™ - Average45%

The 36-Hour Day (6th Edition)

Nancy L. Mace, MA and Peter V. Rabins, MD, MPH

Pages 247-249

Geo Location: All

ALZSmart Review™ - Summary of Contents

Describes grieving when the person is still alive.  Explains how grieving for a person with a cronic illness is often misunderstood by society.
The 36-Hour Day (6th Edition)
ALZSmart Score™ - Average40%

Thoughtful Dementia Care: Understanding the Dementia Experience

Jennifer Ghent-Fuller

Pages 164-169

Geo Location: All

ALZSmart Review™ - Summary of Contents

Discusses the emotional feelings of loss for caregivers of people with dementia.
Thoughtful Dementia Care:  Understanding the Dementia Experience
ALZSmart Score™ - Average40%

The Alzheimer's Disease Caregiver's Handbook

Sally Willard Burbank, MD and Sue Pace Bell

Pages 275-279

Geo Location: All

ALZSmart Review™ - Summary of Contents

Use examples on the transition that happens after losing a loved one to Alzheimer's.  Focus on new beginnings with a list of 20 ideas for moving on.
Grief and Learning to Move On
ALZSmart Score™ - Satisfactory25%

Alzheimer's Through the Stages: A Caregiver's Guide

Mary Moller, MSW, CAS

Pages 124-125

Geo Location: All

ALZSmart Review™ - Summary of Contents

Understanding your feelings of loss and facing your feelings.
Alzheimer's Through the Stages:  A Caregiver's Guide

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